Monday, February 13, 2012

Advocacy kits get the word out!



Across America, DSF has noticed the impressive volume of local, regional, State and National level Down syndrome focused advocacy groups. One of the ways we hope to partner with each and every DS organization is to provide them with memorable advocacy products to assist in meetings with policy decision makers.

Our newly released advocacy kits contain small “leave behinds” which can provide a message about DS by use of the footprint symbol. Not so long ago, in the State of Wisconsin, there was a very successful campaign organization by Birth to 3 (early education) supporters. Funding for that program, as well as many others, was threatened. Birth to 3 adopted a teddy bear theme for their campaign. Bears accompanied supports to the State Capitol, Madison, and were a leave behind with legislators. Birth to 3 did not receive a funding cut that year. Coincidence? Probably not.  Legislator are bombarded every day with messages about funding for programs. Help them remember you and your advocacy for DS by leaving behind a memorable symbol and reminder- the footprint. Each DSF advocacy kit contains a handout with tips and suggestions for organizing and effective campaigns. Let the power of the footprint help your DS advocacy group, you and your loved one successfully advocate for DS.

http://www.downsyndromefootprint.com/new-arrivals/down-syndrome-footprint-advocacy-kit-small/


Sharing the power of the Footprint,

Katia

Monday, January 30, 2012

Welcome to the Secret Club


I was on a girl’s weekend with three of my dearest friends since 1st grade a few months ago. We were reminiscing about the good old days which then led into us sharing stories of our own children with one another. One of my dearest friends pointed something out a little while back that keeps playing in my mind. Her statement was this, “All of us moms love our children with all of our hearts- more than anything in life, but you have something different. When you talk about Anna there is something that none of us can touch- it’s that bond we all dream of that those of us with typical children just can’t quite reach.”

I do know what she is talking about although I have never acknowledged it- she sees a peek into our secret, or obviously not so secret club. This is a club that our children with Down syndrome have brought us into. As moms, dads, siblings, and family members we have automatically become a member. This is a club that we can be ourselves completely, take off our masks, and finally and joyously celebrate Down syndrome.

To all of our friends reading this I want top officially thank you and with a happy heart say, “WELCOME TO THE SECRET DOWN SYNDROME FOOTPRINT CLUB!”

Sharing the power of the Footprint,

Katia 

Monday, January 16, 2012

Triangle of Advocacy


The Down Syndrome Footprint Foundation’s mission focuses on what we have called a “triangle of advocacy” with three points including awareness, employment and empowerment.



As a foundation, we know that any efforts taken to improve awareness about DS, to increase employment opportunities for individuals with DS or to empower them to live a more independent life of inclusion in their community is the most powerful advocacy platform there could be.

Any advocacy campaign is best represented with passionate people, powerful symbolism and person specific stories.   

If you want to advocate on behalf of someone you love with DS, here are some tips:

  1. Check into any local, State or National groups that advocate about DS. A voice of many is more powerful than a voice of one!
  2. Gather stories about individuals with DS (with their permission or their guardians permission if applicable) and share them with your community and your legislators.  Focus on the skills and abilities of the person, highlight activities that prompt independence and inclusion.
  3. Be specific about what programs or initiatives assist individuals with DS to be successful. Advocate for continued funding of these programs.
  4. When advocating, give the receiver of your message something to remember the cause by. A Down Syndrome Footprint lapel pin, tie tack, bracelet or magnet will help them remember, long after your visit, about the cause. 

As an advocate, if you combine your passion and commitment with the symbolism of the “Footprint” you are bound to hit a homerun!! 

Sharing the power of the Footprint,

Katia 

Monday, January 2, 2012

Independence. For all.


Did you know that the Down syndrome community will be flooding Washington, DC with advocates in 2012? There are major Down syndrome conferences being held in Washington, DC this year. As a result, the place will be swarming with DS advocates!

The National Down Syndrome Society (NDSS) and Down Syndrome Affiliates in Action (DSAIA) are partnering to bring DSAIA conference attendees to the annual NDSS Buddy Walk® on Washington, DC. Basically, these two advocacy groups have combined forces and are holding one major conference for everyone, in Washington, DC, the perfect location for a Buddy Walk®This conference will be held February 29 – March 3, 2012.

If that isn’t impressive enough, the National Down Syndrome Congress (NDSC) is celebrating the 40th anniversary of their national conference by hosting it in Washington, DC on July 19 – 22, 2012.  

Every advocacy campaign is best represented with strong symbolism. A strong symbol of a cause, something that is memorable, can represent a cause long after the face to face visit and any conversations about the cause took place.  

The Down syndrome footprint was created with a vision of it being a universal symbol of Down syndrome. Because an enlarged space between the first and second toe is one of the medical markers of Down syndrome, it’s a symbol that directly ties to the cause. Its “memorable” because the footprint is unique. And, it’s cute!

With the scheduling of all of these conferences in Washington, DC, we decided it was a perfect time for Down Syndrome Footprint to assist everyone with their advocacy efforts. To that effect, we will be offering some tools to assist you in advocacy visits, whether in Washington, DC or closer to home. Different items will be offered for sale at the Down Syndrome Footprint Store (http://www.downsyndromefootprint.com/) packaged specifically for advocacy purposes (bracelets, lapel pins, tie tacks, magnets). We are most excited to share with you a new t-shirt that we designed SPECIFICALLY for this purpose!



More information about the conferences listed above can be obtained by visiting the following webpages:



Watch for more information on our blog about 2012: The Year Of Independence – including tips, suggestions, strategies, and of course - the powerful, memorable symbol!

Sharing the power of the Footprint,

Katia 

Monday, December 26, 2011

A thank you to Annaliese



Dear Annaliese,

Thank you for changing my life for the better. Your innocence, beauty, joy, passion for life, determination, and love for ALL, teaches me to be a better person. You have given me a gift that no one else in the world has given, and that ONLY a mom of a child with Down syndrome/special needs can understand. You have removed the insignificant everyday matters that I used to be so caught up in, and changed my focus to celebrating only the significant and important things in life. My beautiful princess, you have taught me to focus on only the things that really DO matter: FAITH, FAMILY and FRIENDS.

Anna, I love you more and more every day. Thank you for just being you.

Love,

Mommy (Katia)


Monday, December 19, 2011

Scholarships awarded!

Of all the things I hoped we could accomplish at the Down Syndrome Footprint Foundation, the idea of awarding post secondary scholarships to individuals with DS was the most exciting of them all to me. This year, our vision became a reality. We awarded two post secondary scholarships, of $500 each, to two worth candidates, who I’d like to introduce to you!

Rebekah Maulding is a recent graduate of The Maulding School in Fort MillSouth Carolina.  Rebekah is a very busy person! She was a volunteer last summer at “Camp Holiday” which is sponsored by the Down Syndrome Association of Charlotte capacity. Rebekah enjoyed her work as a Counselor In Training (CIT). At the time of application, Rebekah was looking forward to experiencing “Camp Holiday” again this summer! 
Rebekah also has 10 years experience in dance! She enjoys jazz, hip hop, ballet and modern. She is involved in her church youth group, and also enjoys riding horses in her free time.
Like most recent high school graduates, Rebekah has hopes and dreams. First of all, she would like to be on American Idol one day! And, Rebekah states in her application, “I would like to go to college like my brothers.” For career aspirations, Rebekah states, “I would like to get a job helping children or making food for a caterer.”  
Congratulations Rebekah! She has received a check for $500 to be used in her studies at the University of South Carolina!
Allison Stokes is a recent graduate of Watkins Mill High School in Gaithersburg, Maryland. She is an active community volunteer, including work at a retirement home, an archeological site, and an organic farm. Allison’s most “rewarding” volunteer experience was volunteering as a classroom assistant at two programs run by the local Arc: The Family Infant Child Care Center for medically fragile children and Montgomery Primary Achievement Center for preschool children with disabilities.  In September 2010, she received a Junior Volunteer Service Award from the Arc for her services!
Allison was a member of the Drama Club at school and played the role of a servant in the fall production, Macbeth. Recently, she participated in filming commercials that will be shown at school about proper behavior in the library. She was a member of the Key Club and helped with the All Girls Allowed campaign to prevent baby girls in China from being killed. She was also a member of the National Honor Society.
Alison dreams of a future in human services. She hopes to assist children who are struggling with hardships, whether due to disability, illness, family problems, or abuse, and to be an advocate for young people who have disabilities.
Congratulations, Allison! She has received a check for $500 to be used in her studies at Penn State Mont Alto, where she is already accepted!
As a Foundation, Down Syndrome Footprint strives to assist in the empowerment of individuals with DS to assist them in achieving their goals and dreams in life. It is our hope that the first two scholarship winners will be the beginning of a future filled with not only scholarship awards, but educational achievements for individuals with DS!
If you are interested in making a contribution to our non-profit, The Down Syndrome Footprint Foundation, visit our non-profit webpage at www.DownSyndromeFootprint.org and click on the donate now link. 

Sharing the power of the Footprint,

Katia

Monday, December 12, 2011

Need something for your Christmas list?


The fall catalog was designed to feature products that would be a must have for holiday gift giving. It was with you in mind, and with suggestions from you, that many of our product ideas developed from. I’d like to share a few examples to illustrate how our customers (and FB fans!) influence our product development.

Take for example the wonderful new pendant from Bel Kai designs. I loved this pendant and set forth in a round of collaborative artistic “tennis” (read: many, many back and forths!) with designer and owner Gina Hannah. I tried to capture a sense of emotion that was so clearly popular in our heart pendant (“When I count my blessings, I count you twice). The result is not only stunning, but interchangeable to be used on different chains! I can’t wait to hear how you like it!



When we designed our new women’s t-shirt, it had to be as big of a hit as “Peace-Love-Awareness” (a tough act to follow!). We had a great design in hand (thanks to our artists at Gator Garb.com) and need the perfect word to complete the shirt. After a query of our 1000+ FaceBook fans, we had a list of 25 words that capture the feelings you have for your loved one with DS. We finally settled on the word Inspirational for the shirt. It’s a great word. Annaleise, and everyone I have been blessed to meet with DS (and their families) are an inspiration to me!


  
And lastly, sometimes it’s just a simple request that will generate a new product.  Example: Can Cooler. Of course! We had a lot of requests for this simple item. We’re from Chippewa Falls, WI, home to Leinenkugel’s Brewery. We are accustomed to a can cooler for holding a cold can of our hometown brew. Or, for an ice cold can of my personal favorite, Diet Coke. Whatever your preference, we hope you can use this can cooler on a special beverage for you!






Thanks for your products suggestions, and your inspiration! You’re the best!

Sharing the power of the Footprint,

Katia